I'd love to tell you that we had fabulous news yesterday, but it is not the case. One amazing thing (to us) was that the fluid on Carter's brain went from an 11 to a 6.4, amazed the ultra sound tech and made my heart almost fly out of my chest with the potential of a completely different joy filled day! But, I guess the docs weren't as impressed and didn't pay much attention to his brain.
What the docs ruled out yesterday was all the grey area. Carter seems to either have Trisomy 18 or just has a small nose with club feet. We were shocked beyond words and I seriously will tell you it felt as though the doctor kicked me in the gut, that was how shocked I was. I had kindof researched myself out of thinking Carter could have Trisomy 18 and was pretty much accepting the "Grey area"...thinking we'd be dealing with Downs or something similar. But, nope, we are facing either death or life, black or white, nothing in between it seems. Carter's characteristics are pointing to Trisomy 18, these are his markers...clinched hands that just won't open, a small nasal bone, and club feet; I guess when that formula shows up we are quite possibly dealing with Trisomy 18 and nothing else. To me it is crazy because his heart is good, kidneys good, etc. it is just those three very physical markers, but the doctor assured us it is completely normal to just have those three markers and still be fatal. Unfortunately the doctors experience with these three markers spell heartache for our family and we are once again, just blown away with sadness and confusion. Termination was brought up to us yesterday in detail, even though our stance on the subject was quite clear; which was so hard to sit through and made the reality of this all just so much more awful.
So, what are we waiting for? We are waiting to have it confirmed through an amnio, a test we aren't willing to do right now. There are risks of losing the baby with an amnio. And yes, we have been told the odds of that happening and my response to their statement was "Yes, but you told me I had a half of a percent chance I'd have a trisomy baby, and here we sit, odds mean absolutely nothing to me. They meant a ton to me 5 weeks ago, but now nothing." We are not willing to do the amnio until Carter is further along and could be delivered if something went wrong. Which means we wait in that stinking "waiting room" and pray for miracles still.
We have an ultra sound scheduled for about two weeks from now, they will be specifically looking for a "high five" hand. Hand/hands that are open in a high five position. We are praying mightily that Carter will high five us in that ultra sound. If he does, our chances of Trisomy go to only 2%, which is amazing to us. So, please, pray for a bunch of high fives and that he does not have Trisomy 18 at all.
Like I said, the sadness has flooded us again, especially when we think of our kiddos. Zachary wanted to know if Carter was better at all and we were excited to tell him his brain was better. I explained to him that Carter could still be very sick though and could get his mansion in Heaven before us (the whole mansion thing thrills Zac, hence why I chose that route with him). Zac was thoughtful and said "But I won't get to know what his favorite thing was." I assured him that of course Carter would think his big brother was his favorite thing. Then Zac said "No, I mean what he loves to do." I tried to let him know that with a big brother who loves Star Wars so much, Carter favorite thing to do would of course be playing Star Wars. This satisfied Zachary, but is just so hard on his mommy right now.
This sucks, it sucks beyond words. I sit here in tears, telling you I absolutely hate this awful priveledge. I completely comprehend the line that is constantly playing in my head..."lean not on your own understanding." It just is in repeat mode in my mind, and I get it. I can not even begin to understand, much less lean on my own understanding. This was the Lord's plan before time even began, and that is just something I can't understand most likely won't. The only explanation for this is for Him to be glorified, for perhaps you to find Him through the words you read. Right now, that is the only understanding I can grasp, but I know beyond a shadow of a doubt, when he spoke so incredibly clearly to us in goosebump ways last year, He was speaking us into this plan. This is what He wanted, that means it is what we want too...which sucks. Perhaps you can't understand how those phrases could be together to make up one sentence. We want what He wants, but we are human at the same time and sometimes the pain of what He wants is so unbearable, but His plan is so much deeper and more wonderful than we can ever dream...know how we can say that? He has amazing history. He is so faithful even when it appears not, my goodness, He IS. We've seen that in our own life as a married couple dealing with adoption, infertility, special needs, hospital stays, He has proven himself faithful and is so Sovereign. But even before the Plamondon family existed, He has the solid Portfolio, it's called the Bible..read it, you'll see He is faithful.
I want Carter to live, I scream that through my tears. I want to raise him so bad, I want him to have battles with Zachary in Star Wars and I want McKenzie to put princess clothes on him and annoy him greatly. I want that so bad I could break. I want sleepless nights, dirty diapers, I want to rock him and tell him of his great story and how God has grown us through it. I don't want it to be God telling him the story in 5 months, I want to tell him in 5 years. I don't want God to take him yet. I so want him to annoy me with whining and fussing, and make me laugh when he just says crazy things, I want to discipline and love him, I want everything with him. I am fully aware that it is likely I may not get that. And it is with discipline I pray for His will, it is not at all easy to accept. But it is with great might I beg for a miracle, and it is with firm promise that either way He will be glorified through me.





